renosparks
25-10-2012, 09:19 PM
Hi!
I'm not sure if this is the right place to post this, but I thought it may be of interest to some of the members here. (Mods: please move it to a better thread if I've put it in the wrong place.)
Many of the ladies on CraftTelly have been very supportive in the past, donating cards to raise funds for my DS1's terrible genetic condition: Fibrodysplasia Ossificans Progressiva.
On Ch4 Thursday 1st November there is a documentary about the condition if anyone is interested. Oliver isn't featured in the show but hopefully it will raise further awareness into the condition.
Over the past 8 months, some of the FOP families have been desperately trying to raise £120,000 to keep the research programme at the University of Oxford. Hopefully the show will take us another step closer to keeping the research in this country going.
Helen
I'm not sure if this is the right place to post this, but I thought it may be of interest to some of the members here. (Mods: please move it to a better thread if I've put it in the wrong place.)
Many of the ladies on CraftTelly have been very supportive in the past, donating cards to raise funds for my DS1's terrible genetic condition: Fibrodysplasia Ossificans Progressiva.
On Ch4 Thursday 1st November there is a documentary about the condition if anyone is interested. Oliver isn't featured in the show but hopefully it will raise further awareness into the condition.
Over the past 8 months, some of the FOP families have been desperately trying to raise £120,000 to keep the research programme at the University of Oxford. Hopefully the show will take us another step closer to keeping the research in this country going.
Helen